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Author (up) Tim A. Majchrzak; Oliver Schmitt isbn  openurl
  Title Improving epidemiology research with patient registries based on advanced web technology Type Conference Article
  Year 2012 Publication ISCRAM 2012 Conference Proceedings – 9th International Conference on Information Systems for Crisis Response and Management Abbreviated Journal ISCRAM 2012  
  Volume Issue Pages  
  Keywords Information systems; Amount of information; Crisis management; Electronic data; Electronic health record; Patient registry; Performance requirements; Registry; Required functionalities; Diseases  
  Abstract To store patients' medical histories and to exchange them between physicians, patient registries are used. Registries contain detailed data on patients and their treatments, and may comprise additional documents. This makes them very valuable for epidemiological research due to the amount of information contained. Providing data for research requires anonymization and pseudonymization to address privacy laws and security concerns. To be able to give feedback to physicians e.g. about discovered treatment possibilities, advanced pseudonymization has to be used. We present progress in the development of patient registries and the required functionality to support research. Usability, explicability, and performance requirements are addressed by incorporating Web technology. Our findings include ways to develop patient registries as well as the description of mechanisms built into them. In particular, we show applications to and implications for crisis management. © 2012 ISCRAM.  
  Address Department of Information Systems, University of Münster, Germany  
  Corporate Author Thesis  
  Publisher Simon Fraser University Place of Publication Vancouver, BC Editor L. Rothkrantz, J. Ristvej, Z.Franco  
  Language English Summary Language English Original Title  
  Series Editor Series Title Abbreviated Series Title  
  Series Volume Series Issue Edition  
  ISSN 2411-3387 ISBN 9780864913326 Medium  
  Track Planning and Foresight Expedition Conference 9th International ISCRAM Conference on Information Systems for Crisis Response and Management  
  Notes Approved no  
  Call Number Serial 162  
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