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Improving epidemiology research with patient registries based on advanced web technology
Tim A. Majchrzak
Oliver Schmitt
L. Rothkrantz, J.R., Z.Franco
To store patients' medical histories and to exchange them between physicians, patient registries are used. Registries contain detailed data on patients and their treatments, and may comprise additional documents. This makes them very valuable for epidemiological research due to the amount of information contained. Providing data for research requires anonymization and pseudonymization to address privacy laws and security concerns. To be able to give feedback to physicians e.g. about discovered treatment possibilities, advanced pseudonymization has to be used. We present progress in the development of patient registries and the required functionality to support research. Usability, explicability, and performance requirements are addressed by incorporating Web technology. Our findings include ways to develop patient registries as well as the description of mechanisms built into them. In particular, we show applications to and implications for crisis management. © 2012 ISCRAM.
urn:ISBN:9780864913326
openurl:?ctx_ver=Z39.88-2004&rfr_id=info%3Asid%2Fidl.iscram.org%2F&genre=proceeding&title=Improving%20epidemiology%20research%20with%20patient%20registries%20based%20on%20advanced%20web%20technology&stitle=ISCRAM%202012&issn=2411-3387&isbn=9780864913326&date=2012&aulast=Tim%20A.%20Majchrzak&au=Oliver%20Schmitt&pub=Simon%20Fraser%20University&place=Vancouver%2C%20BC&sid=refbase%3AISCRAM
url:http://idl.iscram.org/show.php?record=162
citekey:TimA.Majchrzak+OliverSchmitt2012
citation:Tim A. Majchrzak, & Oliver Schmitt. (2012). Improving epidemiology research with patient registries based on advanced web technology. In Z.Franco J. R. L. Rothkrantz (Ed.), ISCRAM 2012 Conference Proceedings – 9th International Conference on Information Systems for Crisis Response and Management. Vancouver, BC: Simon Fraser University.
2012
ConferencePaper
text
Information systems
Amount of information
Crisis management
Electronic data
Electronic health record
Patient registry
Performance requirements
Registry
Required functionalities
Diseases
Simon Fraser University
English
2411-3387
ISCRAM 2012 Conference Proceedings – 9th International Conference on Information Systems for Crisis Response and Management
2012
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