| Records |
Author  |
Tim A. Majchrzak; Oliver Schmitt |
| Title |
Improving epidemiology research with patient registries based on advanced web technology |
Type |
Conference Article |
| Year |
2012 |
Publication |
ISCRAM 2012 Conference Proceedings – 9th International Conference on Information Systems for Crisis Response and Management |
Abbreviated Journal |
ISCRAM 2012 |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Information systems; Amount of information; Crisis management; Electronic data; Electronic health record; Patient registry; Performance requirements; Registry; Required functionalities; Diseases |
| Abstract |
To store patients' medical histories and to exchange them between physicians, patient registries are used. Registries contain detailed data on patients and their treatments, and may comprise additional documents. This makes them very valuable for epidemiological research due to the amount of information contained. Providing data for research requires anonymization and pseudonymization to address privacy laws and security concerns. To be able to give feedback to physicians e.g. about discovered treatment possibilities, advanced pseudonymization has to be used. We present progress in the development of patient registries and the required functionality to support research. Usability, explicability, and performance requirements are addressed by incorporating Web technology. Our findings include ways to develop patient registries as well as the description of mechanisms built into them. In particular, we show applications to and implications for crisis management. © 2012 ISCRAM. |
| Address |
Department of Information Systems, University of Münster, Germany |
| Corporate Author |
|
Thesis |
|
| Publisher |
Simon Fraser University |
Place of Publication |
Vancouver, BC |
Editor |
L. Rothkrantz, J. Ristvej, Z.Franco |
| Language |
English |
Summary Language |
English |
Original Title |
|
| Series Editor |
|
Series Title |
|
Abbreviated Series Title |
|
| Series Volume |
|
Series Issue |
|
Edition |
|
| ISSN |
2411-3387 |
ISBN |
9780864913326 |
Medium |
|
| Track |
Planning and Foresight |
Expedition |
|
Conference |
9th International ISCRAM Conference on Information Systems for Crisis Response and Management |
| Notes |
|
Approved |
no |
| Call Number |
|
Serial |
162 |
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| Author |
Oliver Schmitt; Tim A. Majchrzak |
| Title |
Using document-based databases for medical information systems in unreliable environments |
Type |
Conference Article |
| Year |
2012 |
Publication |
ISCRAM 2012 Conference Proceedings – 9th International Conference on Information Systems for Crisis Response and Management |
Abbreviated Journal |
ISCRAM 2012 |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Data storage equipment; Health care; Management information systems; Medical computing; Medical information systems; CouchDB; Crisis management; Crisis management systems; Development project; Document; Document-based; Medical data sets; Medical research; Database systems |
| Abstract |
Healthcare and crisis management are pervaded by the usage of Information Systems (IS). Virtually all IS rely on data storage. Despite the document-oriented nature of medical datasets, the prevailing kind of database used are relational (RDBMS) ones. In order to find a more adequate solution in a development project for a patientregistry, we evaluated a document-based database incorporated into the data storage layer of a system. To foster the understanding of this technology, we present the background of form-originated data storage in healthcare, introduce document-based databases, and describe our scenario. Based on our findings, we generalize the results with a focus on crisis management. We found that document-based databases such as CouchDB are well-suited for IS in medical contexts and might be a feasible option for the future implementation of systems in various fields of healthcare, crisis response, and medical research. © 2012 ISCRAM. |
| Address |
Department of Information Systems, University of Münster, Germany |
| Corporate Author |
|
Thesis |
|
| Publisher |
Simon Fraser University |
Place of Publication |
Vancouver, BC |
Editor |
L. Rothkrantz, J. Ristvej, Z.Franco |
| Language |
English |
Summary Language |
English |
Original Title |
|
| Series Editor |
|
Series Title |
|
Abbreviated Series Title |
|
| Series Volume |
|
Series Issue |
|
Edition |
|
| ISSN |
2411-3387 |
ISBN |
9780864913326 |
Medium |
|
| Track |
Healthcare Crisis Management Systems |
Expedition |
|
Conference |
9th International ISCRAM Conference on Information Systems for Crisis Response and Management |
| Notes |
|
Approved |
no |
| Call Number |
|
Serial |
202 |
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