Syed Ahmed, Paul A. BiedrzyckiA., Shannon Opel, David A. Nelson, Marie G. Sandy, & Zeno Franco. (2012). Community engagement for translational disaster research: Fostering public, private & responder group partnerships. In Z.Franco J. R. L. Rothkrantz (Ed.), ISCRAM 2012 Conference Proceedings – 9th International Conference on Information Systems for Crisis Response and Management. Vancouver, BC: Simon Fraser University.
Abstract: Vulnerable communities are disproportionately impacted by major disasters. Information scientists working to improve disaster planning and mitigation efforts in these communities often involve first responder (practitioner) groups in collaborative design; however, less emphasis has been placed on developing long-term, sustainable crisis informatics partnerships at the population level. Community-based participatory research approaches are gaining attention in the US as an important element in translational science efforts designed to move innovations “from the bench to the curbside.” Community Engagement in Research (CEnR) is a community research approach adopted US National Institutes of Health (NIH) to improve public health intervention. CEnR has implications for improving the generalizability of ISCRAM research, may provide a roadmap for Public/Private/Community disaster research partnerships, and suggests modifications to training for information scientists working in this arena. The CEnR approach also recognizes conflicts that can occur in community/government partnerships, emphasizing the importance of predicting and preventing these situations. © 2012 ISCRAM.
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Robert T. Brigantic, David S. Ebert, Courtney D. Corley, Ross Maciejewski, George A. Muller, & Aimee E. Taylor. (2010). Development of a quick look pandemic influenza modeling and visualization tool. In C. Zobel B. T. S. French (Ed.), ISCRAM 2010 – 7th International Conference on Information Systems for Crisis Response and Management: Defining Crisis Management 3.0, Proceedings. Seattle, WA: Information Systems for Crisis Response and Management, ISCRAM.
Abstract: Federal, State, and local decision makers and public health officials must prepare and exercise complex plans to contend with a variety of possible mass casualty events, such as pandemic influenza. Through the provision of quick look tools (QLTs) focused on mass casualty events, such planning can be done with higher accuracy and more realism through the combination of interactive simulation and visualization in these tools. If an event happens, the QLTs can then be employed to rapidly assess and execute alternative mitigation strategies, and thereby minimize casualties. This can be achieved by conducting numerous “what-if” assessments prior to any event in order to assess potential health impacts (e.g., number of sick individuals), required community resources (e.g., vaccinations and hospital beds), and optimal mitigative decision strategies (e.g., school closures) during the course of a pandemic. In this presentation, we overview and demonstrate a pandemic influenza QLT, discuss some of the modeling methods and construct and visual analytic components and interface, and outline additional development concepts. These include the incorporation of a user selectable infectious disease palette, simultaneous visualization of decision alternatives, additional resource elements associated with emergency response (e.g., first responders and medical professionals), and provisions for other potential disaster events.
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Wendy A. Edwards, Awais Vaid, & Ian S. Brooks. (2010). INDICATOR: An open-source cyberenvironment for biosurveillance. In C. Zobel B. T. S. French (Ed.), ISCRAM 2010 – 7th International Conference on Information Systems for Crisis Response and Management: Defining Crisis Management 3.0, Proceedings. Seattle, WA: Information Systems for Crisis Response and Management, ISCRAM.
Abstract: In this paper, we discuss the architecture and implementation of INDICATOR, a free open source cyberenvironment for disease surveillance. Biosurveillance entails numerous tasks, including data acquisition and preparation, analysis, and reporting. These tasks can be modeled and executed as a workflow. Workflows encapsulate data, tools, and metadata. Cyberenvironments provide integrated, user-friendly sets of tools and services to marshal resources and help researchers analyze, visualize, and model their data. INDICATOR uses an Eclipse-based cyberenvironment that supports interactive workflow creation, connection to data and event streams, provenance tracking, and reuse of workflows and fragments to acquire, analyze, and visualize public health data.
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Elizabeth Avery Gomez, Katia Passerini, & Karen Hare. (2006). Public health crisis management: Community level roles and communication options. In M. T. B. Van de Walle (Ed.), Proceedings of ISCRAM 2006 – 3rd International Conference on Information Systems for Crisis Response and Management (pp. 435–443). Newark, NJ: Royal Flemish Academy of Belgium.
Abstract: Crisis management efforts in the United States public health sector aim to prepare and protect the life of an individual, family or group against a health-related event. These efforts span governmental, nongovernmental and private sectors. The need for coordination between these organizations has never been more apparent. A solution will depend heavily on standardized communication protocols using information and communication technology (ICT). Numerous initiatives are currently addressing the needs of our nation with respect to homeland security and public health, yet remain in the early stages for the nongovernmental sector. The emphasis of our research is at the local level where the governmental sector extends to the nongovernmental sector (NGO), particularly community outreach. Our analysis of the local community suggests focusing on the management of communication during public health crises to better understand the complexities and variations presented in these communities. Leveraging experiences from media-technology literature findings and emergency-response efforts, we seek to identify a framework and tools to enable effective communication for those public health practitioners who serve as front-line responders to public health crises. The major contributions of this research will be to extend the use of information systems and mobile technology to the local United States public health communities to increase effective communication between organizations, while providing a state of readiness for homeland security related events.
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Geoffrey Hoare, Mary Beth Russell, Aaron Kite-Powell, & Rick France. (2010). Developing H1N1 hospital surge dashboard indicators: A demonstration. In C. Zobel B. T. S. French (Ed.), ISCRAM 2010 – 7th International Conference on Information Systems for Crisis Response and Management: Defining Crisis Management 3.0, Proceedings. Seattle, WA: Information Systems for Crisis Response and Management, ISCRAM.
Abstract: Developing key state-wide indicators of Florida's health care system's public health capacity during the H1N1 Pandemic has been challenging. This demonstration outlines work to develop a key indicator of patient surge caused by the H1N1 outbreak. Further work to calibrate this measure and relate it to surge in other health care organizations is outlined.
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Iva Seto, David Johnstone, & Jennifer Campbell-Meier. (2018). Experts' sensemaking during the 2003 SARS crisis. In Kristin Stock, & Deborah Bunker (Eds.), Proceedings of ISCRAM Asia Pacific 2018: Innovating for Resilience – 1st International Conference on Information Systems for Crisis Response and Management Asia Pacific. (pp. 44–55). Albany, Auckland, New Zealand: Massey Univeristy.
Abstract: This paper depicts the real-time sensemaking of experts as they worked to combat the first emerging disease of the 21st century: Severe Acute Respiratory Syndrome (SARS). Newspaper data was analysed from the 2003 SARS crisis, with a Canadian perspective, to follow the process of solving the puzzle of this emerging disease. Retrospective sensemaking is a process that is triggered by the unexpected, which leads to actors gathering information (taking action) in order to consider possible interpretations for the unexpected event. Disease outbreaks serve as sensemaking triggers, and actors engage in retrospective sensemaking to find out the factors involved in how the outbreak happened. Prospective sensemaking (future-oriented) is employed when actors work together to plan how to combat the disease. The newspaper data demonstrate that retrospective and prospective sensemaking are tethered: to make plans to combat a disease, actors first require a collectively agreed upon understanding from which they can generate possibilities for a crisis response. This paper contributes to the field by providing concepts for long-duration crisis sensemaking, as the bulk of organisational research focuses on acute crises such as wildfires, or earthquakes.
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Erik R. Janus, Susan Manente, & Sharon L. Lee. (2008). Best practices in chemical emergency risk communication: The Interstate Chemical Terrorism Workgroup. In B. V. de W. F. Fiedrich (Ed.), Proceedings of ISCRAM 2008 – 5th International Conference on Information Systems for Crisis Response and Management (pp. 774–777). Washington, DC: Information Systems for Crisis Response and Management, ISCRAM.
Abstract: The Interstate Chemical Terrorism Workgroup (ICTW) was formed in 2002 and currently includes members from nearly all states and Washington, DC, as well as representation from a number of non-governmental organizations. In addition to offering monthly conference call/presentations, the ICTW partnered with the Centers for Disease Control and Prevention (CDC) in 2003 to host a workshop to address basic elements of risk communication needs in a chemical event. The primary goal of the workshop was to develop a list of core competencies and benchmarks as well as a series of fact sheet templates destined for the general public and press, health care providers, public health department and/or officials, and first response and emergency workers (Lee et al., 2006). Key findings of the 2003 workshop, along with other work being done by CDC, academia and the states, underscore the importance of public health agencies in providing risk communication services during (and particularly after) chemical emergencies, whether intentional or not. Tools developed by the ICTW have been used and/or consulted by many groups involved in public health preparedness. This case study will examine the efforts of Michigan to implement these tools to reduce information overload in an emergency.
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Noel Johnson, & Ann Fruhling. (2006). Development and assessment of the STATPack[TM] emergency response system. In M. T. B. Van de Walle (Ed.), Proceedings of ISCRAM 2006 – 3rd International Conference on Information Systems for Crisis Response and Management (pp. 197–201). Newark, NJ: Royal Flemish Academy of Belgium.
Abstract: The STATPack is a telemedicine consultation and emergency response system which was developed to increase statewide laboratory responsiveness to public health emergencies. Although several emergency response management information systems have been created for diagnostic laboratories at the national level, most states in the U.S. do not have the capability to share critical public health microbiology laboratory information at local levels, especially in rural communities. This paper offers a description and preliminary assessment of the STATPack as it is being deployed by the Nebraska Public Health Laboratory and should be recognized as research in-progress. Initial experiences with this emergency response system have been encouraging.
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Josep Cobarsí, & Laura Calvet. (2021). Quantitative data about deaths due to COVID-19 and comparability between countries: An approach through the case of Spain. In Anouck Adrot, Rob Grace, Kathleen Moore, & Christopher W. Zobel (Eds.), ISCRAM 2021 Conference Proceedings – 18th International Conference on Information Systems for Crisis Response and Management (pp. 294–304). Blacksburg, VA (USA): Virginia Tech.
Abstract: Mortality statistics tend to be inaccurate because of the imperfections related to individual deaths' recording. Recently, the COVID-19 pandemic has brought controversies regarding the quantification of deaths in many countries. Mainly, controversies were fueled by the sudden change of the criteria being applied, the limited testing and tracing capacities, and the collapse of the healthcare system. This work analyses the case of Spain, which constitutes one of the European countries with the highest number of cases and deaths during the 'first wave'. It provides a discussion about the coherence, traceability and limitations of quantitative data sources, as a basis to improve the quality of the data and its comparability between different countries and over time. Official data sources and non-official data sources are considered. Finally, suggestions of improvement and research needs are gathered, for the reliability of mortality data as a way to enhance learning and resilience for future crises.
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Elizabeth Losh. (2007). The birth of the Virtual Clinic: Game spaces in the Virtual Practicum and the Virtual Terrorism Response Academy. In K. Nieuwenhuis P. B. B. Van de Walle (Ed.), Intelligent Human Computer Systems for Crisis Response and Management, ISCRAM 2007 Academic Proceedings Papers (pp. 551–556). Delft: Information Systems for Crisis Response and Management, ISCRAM.
Abstract: The Interactive Media Laboratory at Dartmouth Medical School produces computer games and multimedia programs for public health preparedness. With Department of Homeland Security funding, the IML is developing the Virtual Terrorism Response Academy, which uses game technology to prepare first responders for rescue efforts in which hazardous materials may be involved. This paper looks at the history of the “Virtual Clinic” concept and the original rationale for creating what Max Boisot calls “epistemology space.” It also offers an account of the VRTA designers' responses to potential criticism from learning specialists in game studies who object that the game is too didactic and discourages trial-and-error by restraining the learner in the narrative conceit of a “simulation of a simulation.”.
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Sung Pil Moon, Yikun Liu, Steven O. Entezari, Afarin Pirzadeh, Andrew Pappas, & Mark Pfaff. (2013). Top health trends: An information visualization tool for awareness of local health trends. In J. Geldermann and T. Müller S. Fortier F. F. T. Comes (Ed.), ISCRAM 2013 Conference Proceedings – 10th International Conference on Information Systems for Crisis Response and Management (pp. 177–187). KIT; Baden-Baden: Karlsruher Institut fur Technologie.
Abstract: We developed an intelligent information visualization tool to enable public health officials to detect healthrelated trends in any geographic area of interest, based on Twitter data. Monitoring emergent events such as natural disasters, disease outbreaks, and terrorism is vital for protecting public health. Our goal is to support situation awareness (SA) for personnel responsible for early detection and response to public health threats. To achieve this goal, our application identifies the most frequently tweeted illnesses in a ranked chart and map for a selected geographic area. Automated processes mine and filter health-related tweets, visualize changes in rankings over time, and present other keywords frequently associated with each illness. User-centered visualization techniques of monitoring, inspecting, exploring, comparing and forecasting supports all the three stages of SA. An evaluation conducted with experts in health-related domains provided significant insights about awareness of localized health trends and their practical use in their daily work.
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Savannah Thais, Shaine Leibowitz, Allie Saizan, & Ashay Singh. (2022). Understanding Historical, Socio-Economic, and Policy Contributions to COVID-19 Health Inequities. In Rob Grace, & Hossein Baharmand (Eds.), ISCRAM 2022 Conference Proceedings – 19th International Conference on Information Systems for Crisis Response and Management (pp. 481–494). Tarbes, France.
Abstract: The COVID-19 pandemic has generated unprecedented, devastating impacts across the United States. However, some communities have disproportionately endured adverse health outcomes and socioeconomic injuries. Ascertaining the factors driving these inequities is crucial to determining how policy could mitigate the impacts of future public health crises. We have established research-driven metrics, aggregated as the Community Vulnerability Index (CVI), that quantify vulnerability to public health and economic impacts of COVID-19. We performed two analyses to better understand similarities between communities in terms of the vulnerabilities represented by the metrics. We performed an unsupervised k-means clustering analysis to understand whether communities can be grouped together based on their levels of negative social and health indicators. Our goal for this analysis is to determine whether attributes of the constructed clusters reveal areas of opportunity for potential policy impacts and future disaster response efforts. We also analyzed similarities between communities across time using time-sensitive clustering analysis to discover whether historical community vulnerabilities were persistent in the years preceding the pandemic and to better understand the historical factors associated with disparate COVID-19 impacts. In particular, we highlight where communities should invest based on their historical health and socioeconomic patterns and related COVID impacts. Through extensive interpretation of our findings, we uncover how health policy can advance equity and improve community resilience.
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Yasas Senarath, Jennifer Chan, Hemant Purohit, & Ozlem Uzuner. (2021). Evaluating the Relevance of UMLS Knowledge Base for Public Health Informatics during Disasters. In Anouck Adrot, Rob Grace, Kathleen Moore, & Christopher W. Zobel (Eds.), ISCRAM 2021 Conference Proceedings – 18th International Conference on Information Systems for Crisis Response and Management (pp. 97–105). Blacksburg, VA (USA): Virginia Tech.
Abstract: During disasters public health organizations increasingly face challenges in acquiring and transforming real-time data into knowledge about the dynamic public health needs. Resources on the internet can provide valuable information for extracting knowledge that can help improve decisions which will ultimately result in targeted and efficient health services. Digital content such as online articles, blogs, and social media are some of such information sources that could be leveraged to improve the health care systems during disasters. To efficiently and accurately identify relevant disaster health information, extraction tools require a common vocabulary that is aligned to the health domain so that the knowledge from these unstructured digital sources can be accurately structured and organized. In this paper, we study the degree to which the Unified Medical Language System (UMLS) contains relevant disaster, public health, and medical concepts for which public health information in disaster domain could be extracted from digital sources.
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